fibromyalgia

Not to shit on your parade or anything, but it's really debatable whether or not fibromyalgia actually exists... It could be all in your head, daWg.

p.s. EXSS degree, I've spoken with a few PT's and ATC's about it.

On July 07 2010 01:31 thumbz555 wrote: Not to shit on your parade or anything, but it's really debatable whether or not fibromyalgia actually exists... It could be all in your head, daWg. p.s. EXSS degree, I've spoken with a few PT's and ATC's about it.

Thank you. Was going to post this exact same ting.

It's all in your head, brah.

On July 07 2010 00:53 sawseech wrote: i gotz it anyone here gotz any anecdotal exp. widdit? friends/family members etc. thx -w

Be careful with the way doctors and hospitals analyze you as well. There are literally hundreds of thousands of people trying to claim they have fibro to get constant pain med prescriptions

On July 07 2010 01:31 thumbz555 wrote: Not to shit on your parade or anything, but it's really debatable whether or not fibromyalgia actually exists... It could be all in your head, daWg. p.s. EXSS degree, I've spoken with a few PT's and ATC's about it.

yes, i am aware of this debate. i have spoken at length about it with various MDs.

FMS etiology is complex. we have the actual sensory experience as relayed across the peripheral nervous system (pain actual) which is then interpreted by the brain after being granted access (noiception).

this type of pain would be stubbing your toe and registering it, and saying, fuck in a conscious expression of that pain as the proof of that pain as actual

i've actual proven that my own FMS pain can be turned on or off through the intake of pharmacological stuff of various make and measure; FMS is definitely and variably in the brain, either noiceptionally, or pain centers, or an excessive emotionality to either or both; there's also the effect FMS has on sleep, general digestive function, co-morbidity of depressive symptoms, general sense of well being, all that shit

i could go on but i won't and i do appreciate your input on this

On July 07 2010 01:36 Carthac wrote: Show nested quote + On July 07 2010 00:53 sawseech wrote: i gotz it anyone here gotz any anecdotal exp. widdit? friends/family members etc. thx -w Be careful with the way doctors and hospitals analyze you as well. There are literally hundreds of thousands of people trying to claim they have fibro to get constant pain med prescriptions

these people are substance abusers. substance abuse is a health issue. are those who may or may not have FMS more likely to be substance abusers than the general population? i would say yes, definately. i do find it interesting that these substance abusers would seek out opioids as opposed to caffeine, nicotine, THC, cannabanoids, hallucinogenics, euphorics, uppers, downers, dope crack smack woteva. i think that noiception is something that can become dysfunctional and that the mediation of that dysfunction may express itself as opioid substance abuse.

for instance:

we have a chronic but pharmacologically unresponsive depressive with a marginal intellect. he has, at times, previously drank alcohol to excess in order to manage is general sense of malaise. he is injured - how doesn't matter. his noiceptive sense is altered and he begins to manifest minor pain symptoms after he has healed physically. as a depressive, his emotional response to that pain is heightened. he tries various legal and non-legal pharmacology and finds that opioids help him to "feel better." he rapidly goes past that, and into hard abuse being completely unfamiliar with the pharmacology of opioids. more to the point, he doesn't give a fuck about pharmacology. he doesn't know what the word means. years pass.

he is categorized as a drug seeker, and denied opioids. stuff happens as related to, say, hypoglycemia, another co-morbidity, whatever. use your imagination.

does this man have FMS?

this is a complex issue.

my own stance on the issue is many-fold:

first, i think that most dispensers are excessive in their withholding of opioids for those with pain symptoms; i think that they play it too safe for fear of revocation of licensure given how the present legal-peer evaluative process stands as a whole on opioids and for fear that their patient may dope themselves into respiratory arrest often leading directly to that legal-peer evaluative process. this leads dispensers to be overtly wary of those who present with general pain symptoms primarily for fear of repurcussions to themselves, which is how it is and, well, fuck how it should be because they wouldn't be intelligent humans if they were not so primarily interested and invested. this leads to larger issues of how pharmacologically active substances of any kind should be managed on a socio-economic-policital-politikal-legal-moral-ethical-spiritual basis which is, of course, well beyond the scope of this post or even the mind of any single intelligent human on this planet, at least one capable of expressing themselves cogently (probably).

secondly, i think that the abuse of a pharmacologically active substance, any substance, should be a general health issue, and not a legal one. this is my personal take on the issue and has, of course, nothing to do with how things are conducted in the majority of the civilised world, which also happens to be where the predominant variety of active substances can be acquired.

thirdly, i also think that quality of life issues are under evaluated through the course of determining the best possible treatment option for those who may have FMS (as interpreted by the person doing the interpreting). this is largely but not singularly related to the first part of my stance.

forth, i think that our present stage of knowledge as it pertains to ourselves as a species is woefully inadequate in a general form and that to presume otherwise and to present oneself (be it an individual, board, peer-approved paper writer, organization, legislator, whatever) as a legitimate authority on the subjective assessment of another person's state of existence, in this case as it relates to that person's perception of pain, is, in my humble estimation, on it's face flat-out ridiculous and, to be even more frank, subject to my eager ridicule.

we need baal to refute your claims man and make this an lp thread

i would not be opposed to that. mods?

my mom had pain for maybe 2 months in her neck, one doctor diagnosed her fibromyalgia (my grandmother died 1 month before that), other doctors said FM is bullshit, anyway nothing seemed to work but she kept working out (aerobics and shit) and gong out etc and the pain somtimes diminished and sometimes it was stronger.

One day she just simply decided to rest and take care of it properly like regular muscular pain, she stopped working out, puttin heat on it, avoiding going, just letting the muscles rest and it went away, hope it helps.

Personally i think FM is bullshit and its just something doctors use when they cant diagnose where the pain is coming from kinda like they use stress now as excuse for everything

FM is comorbid with depression a very high % of the time. I would guess that your mom briefly fell into a major depression and that exercise and maintenance of her daily routine was her trying to get out of it - or maybe she was just in denial and once she had fully processed the passing of her mother she slowly returned to her baseline functioning and her FMS (if it was even FMS) went away.

You bring up an interesting point about diagnosis. I agree that it is problematic. There's the old test (pressure at 9 points, test for acute pain, either perceived and expressed verbally or thru brain imagine). The thing with this test is if the person is depressed, they'll tend to complain about anything that's in the very least uncomfortable and their psychological processes may cause them to express it as pain.

Then there's modern diagnosis which consists of a pain survey, and interaction/conversation with the patient. This is more geared towards achieving an accurate assessment as to the patient's general functioning; it's more like how u'd diagnose depression and/or misc. anxiety disorders than an actual medical problem.

before my problems started i'd always been very active; i love a good workout, or at least i used to. since i started having to manage pain with opioids i haven't really been able to exercise at all.

it's like there's a subconscious block which, as i interpret it, won't allow me to exert myself physically for fear that i won't regenerate properly (if that makes any sense at all). explained in steps it's almost as if my unconscious mind knows that i'm experiencing severely diminished stage4 sleep and, in turn, causes me to experience pain with exertion so that my overall health, diminished as it is, is not placed anywhere near jeopardy.

there's also the fact that drug companies have come with with total air on FMS, while drugs which are very effective at managing or even curing most or all of the direct effects or co-morbidities have been found (depression, acute pain, diminished appetite, sleep function, etc..). those who stand to make billions having come up with air speaks volumes to the general inscrutability of the syndrome or condition or phantom illness or whatever you want to call it.

as for the sufferers themselves:

- some are depressed, others aren't.
- some respond to opioids/analgesis, others don't
- some were perfectly fine before a trigger incident which initiated it, others develop it spontaneously and without any sort of firm causal/hard math rapeable relationship
- some function almost perfectly in spite of it, without pharmacological assistance. there's something about an individual's coping mechanisms at work here; ever since i found out that i'm FM i think that just knowing has helped a small amount by allowing me to manage myself within a new frame (a FM manager as opposed to a person with chronic pain and other stuff)

i have a similar pain in my left arm and sometimes neck, cannot figure out wtf this hasnt been going away and ive been getting regular therapys from a licensed pt for months now. about to give up soon lol

try the following in sequence:

- mass sleep, sedated if necc. (if it works there's a sleep disorder at work)
- acupuncture (if it works there's some sort of neuropathy at work)
- 2nd class analgesics (forgot what the pharacological name is, it's brand is aleve - other stuff too, non-steroidal, non-opioid)
- xray/mri to find a physical cause ie. pinched nerve, spinal compression, etc.
- psychotherapy
- opioids, or not (codeine -> oxycodone -> hydrocodone) - i am not an MD juss sum guy with an IQ or 146 and, y'know, there are risks n stuff once u start getting up here
- now we have other options which i won't get into here

its really tilting me coz this all started to hurt december 09 when i was really really really depressed ( was gonna separate from the wife and was planning to move out then i discover she's preggerz LOL). and i used to pull muscle/nerve thing but eventually it went away even without any sort of treatment. but this started in december and i feel it just moves from place to place and each time after i have a physical therapy session. i cant do any sort of boxing exercise coz i really cant do a left hook or cross now. real bs

On July 07 2010 06:05 Baal wrote: my mom had pain for maybe 2 months in her neck, one doctor diagnosed her fibromyalgia (my grandmother died 1 month before that), other doctors said FM is bullshit, anyway nothing seemed to work but she kept working out (aerobics and shit) and gong out etc and the pain somtimes diminished and sometimes it was stronger. One day she just simply decided to rest and take care of it properly like regular muscular pain, she stopped working out, puttin heat on it, avoiding going, just letting the muscles rest and it went away, hope it helps. Personally i think FM is bullshit and its just something doctors use when they cant diagnose where the pain is coming from kinda like they use stress now as excuse for everything

pain in your neck for 2 months is NOT FM. general practitioners are retarded in general.

case in point, my gf went to her doctor and asked about anti-depressants, the doctor had not even heard of serotonin. i mean, thats embarrassing.

so many of these doctors got their degrees 10,20,30, and even 40 years ago. and what have we learned since then?

well, consider the mindset of many GPs. most of your time is spent talking to old people who are lonely and who come to you cuz talking to a doctor makes them feel better. in that case it would be pretty hard to find the motivation to actively hone your craft, yes? what's the payoff? you spend the time and energy which could be better spent on yourself or your family to read papers and attend conferences and then come back to old people saying their back hurts and talking about that show on TV and their dog for 30 minutes?